Celine Dion has opened up about her struggle with stiff person syndrome with Vogue France

Last updated: April 22, 2024 5:43 PM

3 Min Read

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In a heartfelt revelation to Vogue France, iconic vocalist Celine Dion shares her ongoing battle with Stiff Person Syndrome (SPS). The legendary “My Heart Will Go On” singer, diagnosed in December 2022, gives fans a glimpse into her life with the rare condition and her unwavering optimism for a cure in the future.

“I didn’t fight the disease, it is still in me and forever. We will find, I hope, a miracle, a way to cure it with scientific research, but I must learn to live with it. So that’s me, now with stiff person syndrome,” revealed to Vogue France.

Dion’s resilience shines through as she describes her rigorous therapy regimen, “Five days a week I do athletic, physical and vocal therapy. I work on my toes as well as my knees, calves, fingers, singing, voice… This is the condition with which I must learn to live now by stopping questioning myself. I started by saying to myself: why me? What happened ? What did I do ? Am I responsible? Life doesn’t give you answers. You simply have to live it! I have this disease for some unknown reason.”

Celine Dion for Vogue France — Photo by Vogue France

Despite the challenges, Dion’s spirit remains unbroken. She emphasizes living life to the fullest despite the uncertainties that come with SPS. Her story is not just one of struggle but of incredible strength and hope as she continues to inspire fans around the globe.

Read it at Vogue France

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