Celine Dion‘s sister has said the family cannot find any medicine to treat the singer suffering from stiff person syndrome. Claudette Dion, however, said it is essential to “have hope.”
Celine shared her diagnosis with fans in December 2022, saying in an Instagram post that she decided to cancel the Courage World Tour. “I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100%,” the singer had said.
Sharing an update about her health, Claudette Dion told Le Journal de Montreal that her sister, Linda, has moved into Celine’s home, where she lives with her three sons, Rene-Charles, Eddy, and Nelson.
“When I call her and she’s busy, I speak to my sister Linda who lives with her and tells me that she’s working hard,” Claudette said in the interview. “She’s listening to the top researchers in the field of this rare disease as much as possible.”
Her sister also said that the choice to cancel the tour was right, and the powerhouse singer needs to rest.
“She always goes above and beyond, she always tries to be the best and top of her game,” said Claudette Dion. “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”
“It’s innate to her, she’s disciplined in every area of her life,” she further said. “We can’t find any medicine that works, but having hope is important.”
Stiff person syndrome is a rare neurological condition which affects one or two persons out of every million. It is characterized by muscle rigidity, spasms, and stiffness.
The disorder causes unpredictable muscle spasms, which can be triggered by stress, noise, or unexpected movements.
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