Celine Dion’s sister gives an update on her health as doctors struggle to find the right medications

Miu von Furstenberg 3 Min Read
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Celine Dion
Canadian singer Celine Dion arrives for the Alexandre Vauthier Women's Fall-Winter 2019/2020 Haute Couture collection fashion show in Paris, on July 2, 2019. (Photo by LUCAS BARIOULET/AFP via Getty Images)

Celine Dion‘s sister has said the family cannot find any medicine to treat the singer suffering from stiff person syndrome. Claudette Dion, however, said it is essential to “have hope.”

Celine shared her diagnosis with fans in December 2022, saying in an Instagram post that she decided to cancel the Courage World Tour. “I'm working really hard to build back my strength, but touring can be very difficult even when you're 100%,” the singer had said.

Sharing an update about her health, Claudette Dion told Le Journal de Montreal that her sister, Linda, has moved into Celine's home, where she lives with her three sons, Rene-Charles, Eddy, and Nelson.

“When I call her and she's busy, I speak to my sister Linda who lives with her and tells me that she's working hard,” Claudette said in the interview. “She's listening to the top researchers in the field of this rare disease as much as possible.”

Celine Dion Miu Miu Club 2020 - Photocall
Celine Dion attends miu miu club event at Hippodrome d'Auteuil on June 29, 2019 in Paris, France.(Photo by Pascal Le Segretain/Getty Images)

Her sister also said that the choice to cancel the tour was right, and the powerhouse singer needs to rest.

“She always goes above and beyond, she always tries to be the best and top of her game,” said Claudette Dion. “At one point, your heart and your body are trying to tell you something. It's important to listen to it.”

“It's innate to her, she's disciplined in every area of her life,” she further said. “We can't find any medicine that works, but having hope is important.”

Celine Dion Schiaparelli : Front Row - Paris Fashion Week - Haute Couture Fall/Winter 2019/2020
Celine Dion attends the Schiaparelli Haute Couture Fall/Winter 2019 2020 show as part of Paris Fashion Week on July 01, 2019 in Paris, France. (Photo by Pascal Le Segretain/Getty Images)

Stiff person syndrome is a rare neurological condition which affects one or two persons out of every million. It is characterized by muscle rigidity, spasms, and stiffness.

The disorder causes unpredictable muscle spasms, which can be triggered by stress, noise, or unexpected movements.


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